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Parkies Poems

Updated: Sep 22, 2021


Parkinson's has opened a poetic part of my brain I didn't know I had! I literally wake up some days with a poem in my head and write it down. Most are personal reflections of life or inspired by my experience with learning to live with Parkinson's. I try to keep a positive approach to my style and write as I feel.

Family and friends have encouraged me to share these and so in June 2020, during the pandemic lockdown, I produced a small booklet of poems called 'Crazy little thing called LIFE!' and raised over £800 for the local Swindon branch of Parkinson's UK. If you would be interested in a copy please contact me at ParkiesPals@outlook.com



Here are some samples of my thoughts and ramblings of just what does go on in my head!


I've written this in April 2021 for World Parkinson's Awareness to try and give a feeling of what it real feels like on a daily basis!

Shuffle in My Shoes


It’s World Parkinson’s Awareness week

So I’m asking all of you,

To just think about a Parkies day,

To shuffle in my shoes!


I wake up stiff and rigid

Until meds kick me out of bed.

I stretch, I cycle to make legs move.

I clear the dreams out of my head.


My day is made up of 4 hourly bites,

Between the ringing of meds alarm,

Mornings are best to get things done,

When movement smoother and more calm.


Evenings are more difficult

Carpet worn with shuffling walk,

A glass of wine sure helps me to relax,

And goes with my slurred and quiet talk!


Some days I can move freely,

Smiling wide and hold conversation.

Other days I could curl up and sleep,

Struggling with sheer frustration.


So don’t judge the stumbling walker

Or the slow person in the queue.

They may be Parkies People

So take a step in their shuffling shoe.

__________________________________________________________________


Wrote this for World Parkinson's Awareness Day 2021

Parkies Pals poetry in slow motion


When Parkinson’s enter into our lives

It effects every moment of every day,

It effects every movement in our body,

It effects every thought and word we say.


Parkinson’s is no respecter

Of the hopes held in our heart

It doesn’t care what dreams we have,

It tries to rule us from the start.

It takes us down the slow lane,

Sometimes freezing us in our tracks!

Makes simple tasks so ruddy difficult,

And we can’t remember simple facts!


But what we do have is our Parkies Pals,

We understand and really care,

A group of friendship and support,

You are never alone, we’re always there.

_____________________________________________________________________

Wrote this in January 2021 after being introduced to online scrabble!


Something’s keeping me from sleeping.



Its 5am I’m wide awake

What IS wrong with my brain?

Somethings keeping me from sleeping

It’s driving me insane.


I block my mind , count fields of sheep

Recite the alphabetic table!

Somethings keeping me from sleeping,

I’m sure I’d doze if I were able.


I try to exercise in the day,

Both physically and in mind,

Somethings keeping me from sleeping,

It’s becoming a real bind.


My skin looks tired, my hairs a mess

I’m sure I’m aging years!

Something keeping me from sleeping

Perhaps growing old is my fear?


I make a list of jobs and reminders,

To try and clear my head.

Somethings keeping me from sleeping

Despite a lovely comfy bed.


So I’ll stop late night online Scrabble,

Have hot milk instead of tea!

I think the something that is keeping me from sleeping

Could possibly be ME !!

_______________________________________________________________________


Family and friendship are most important in my life.


True Friendship


True Friendship is precious with no price tag attached.

True Friendship is timeless and cannot be matched.

Such Friendship is earned through respect, love and care.

Such Friendship is lifelong, with experiences to share.

Through good times and bad, through laughter and tears.

Always there with a hug and great listening ears.

True Friends support never judge; know if it needs coffee or wine!

I am so ever grateful for such True Friends of mine.

___________________________________________________________


I wrote this in the early days of my diagnosis when I was still trying to work out just what I had and how to live with Parkinson’s


Life Behind the mask


Where does Parkinsons come from

And why did it come for me?

I don’t smoke, do drugs, I try to keep fit!

Enjoy a wine or the odd G&T!


Parkinson’s does not discriminate

Doesn’t care about race, sex or age

It switches off your happy cells

Makes your face freeze like a blank page.


It slows down all your movements

Brain says run but your body says walk

Some have the joy of tremors

Loss of smell and slurred talk.


No cure yet just a gradual decline

Not a killer, so thankful for that.

But a condition you do have to live with

Reliant on meds and Neurologist chat!


I try to be a positive ‘Parkie’

Take my meds, keep mobile and fit

A sense of humour is truly essential

And basically I just try to get on with it


Life in the slow lane does takes some adaption

With family and friends helping keep up the pace

There are worse things out there that can get you.

So I try to enjoy life and keep a smile on my face

_________________________________________________________


Exercise is key to managing Parkinson’s. Essential for health and mobility.

Exercise the PD Way

Exercise is good for you, you hear everybody say.

Exercise is medicine and should be taken every day.

Exercise IS good for you, of that there is no doubt,

But exercise the PD way needs a bit more clout!


So take that step, reach for the sky

Walk it, cycle, swim it, run,

Just remember to tell your brain

That you are really having fun!


You don’t have to run a marathon

You don’t have to run at all

Cycle, swim, dance those steps

Or join local walking foot ball!


So let’s motivate each other

To stand when we could sit

Look PD right in the eye -

We may be slow but boy we’re fit!!

________________________________________________________________


Update on life with Parkinson’s 2020 (3 years since diagnosis)


Parkies Progress


Sometimes I despair at my lack of courage and brain!

I just can’t find the words that truly explain

Just how I feel in my lost dopamine world

Where shuffling is the way with joints inwardly curled.


Where thoughts and actions are laborious and slow,

When your body stiffens to stop but your head says ‘go’!

When you stumble along with staggered pace,

When you try to smile with a frozen face.


Emotions run high, irrational thoughts fill your head,

The meds can cause obsessive behaviour it’s said.

You get sympathetic looks as you carry a tray,

When walks that took minutes almost fill the day!


Hanging clothes up is another slow frustrating task,

Making beds up, a joke, I know friends would help if I ask.

I try to keep positive thoughts, keep healthy and fit,

I try to find silver linings, keeping a sense of humour and wit.


I find music a real solace, walk to the beat,

Headphones and trainers and step it out on the street.

One comforting fact is I am not coping alone

There are far worse things out there I really should not moan!


I’ve met other Parkies who live near and far

I’ve a great group of ‘Pals’, you know who you are.

So despite my anxious moments and sloth like way

I do try and make the most of each and every day.

_________________________________________________________


I wrote this in memory of my amazing mum in November 2017


Dear Mum …


Dear Mum I hope you can hear me?

As I feel you each day in my heart.

I try to do things you’d be proud of,

As in my life you play such a big part.


I miss your comforting counsel

I am missing your listening ears

But most of all mum I miss those big hugs

And the love that we all hold so dear.


I am proud to call you my mother

My mentor and friend through and through,

I hope I can pass on your values

Of what life, family and friends meant to you.


I try to keep a positive attitude

A smile on my face from the start,

Dear Mum I know you can hear me

As I feel you each day in my heart.








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